International Alport Syndrome Meeting Report Published

KFOC, Pedersen Family and Partners award two new 2014 Alport Syndrome Research Grants

Dr. Adeera Levin Awarded Kidney Foundation of Canada’s 2014 Medal for Research Excellence

First Nations Adults with Diabetes Have More than Double the Risk of End-Stage Kidney Disease

Dr. Marcello Tonelli Awarded 2013 Medal for Research Excellence for Changing Nephrology Practice in Canada and Beyond

Paying Living Kidney Donors May Be Cost-Effective and Help Prolong Lives

The Kidney Foundation congratulates Dr. Andreas Laupacis on being awarded the inaugural CIHR Barer-Flood Prize in Health Services and Policy Research

New Research to Discover a Cure for Rare Kidney Disease

CSN Announces Editor in Chief of New Journal

Dr. Adeera Levin appointed President of the International Society of Nephrology

Sugary Drinks May Increase Risk of Kidney Stones

Launch of new Canadian National Transplant Research Program

Alberta Researchers Receive Top Achievement in Health Research Award

Kidney Foundation of Canada Helps Fund World’s First Gene Therapy Clinical Trial for Fabry Disease

First-of-Its-Kind Canadian Project to Chart the Future of Dialysis Research

Lead Investigator on Landmark Walkerton Health Study Awarded 2012 Medal for Research Excellence

New Drug Shows Hope for ADPKD Treatment

New Findings Debunk Long-Held Theory that Kidney Disease is Part of the Normal Aging Process

The Kidney Foundation of Canada partners with Kidney Cancer Canada and Government to support national research network

Tue, 15 Jul 2014

International Alport Syndrome Meeting Report Published

July 15, 2014 - The 2014 International Workshop on Alport Syndrome, held in Oxford, UK in January 2014, published its report in the July issue of Kidney International. Support for this Workshop is part of The Kidney Foundation’s collaboration with  other organizations to pool resources to generate new knowledge to reduce the burden of kidney disease and raise awareness of this rare genetic condition.

“The Kidney Foundation of Canada was proud to support this workshop” says Dr. Julian Midgley, President of the Kidney Foundation and Workshop participant, “It was an important step forward in furthering research and clinical care for Alport Syndrome”.

Download the 2014 International Workshop on Alport Syndrome report


The Kidney Foundation of Canada is currently funding the following research on Alport Syndrome:

•    Dr. Judith Savige 2014 – 2015
Correction of the genetic defect in Alport Syndrome using the TALEN approach
The University of Melbourne (Aus)
(co-funded with the Alport Syndrome Foundation (US) and Pedersen Family)

•    Dr. Stefano Da Sacco 2014 - 2015
Podocyte response to injury in Alport Syndrome: an answer from human amniotic fluid kidney progenitors
Children’s Hospital Los Angeles, Cal.
(co-funded with the Alport Syndrome Foundation (US) and Pedersen Family)

Research on Alport Syndrome previously funded by The Kidney Foundation of Canada:

•    Dr. Oliver Gross 2013 – 2014
Nephroprotective and antifibrotic potential of Micro-RNA21 in the COL4A3 mouse model of Alport Syndrome
University Medical Centre Goettingen (Ger)
(co-funded with the Alport Syndrome Foundation (US), the Macquarie Group Foundation and the Pedersen family)

•    Dr. Christopher Licht 2012 – 2013
Eculizumab in Alport Syndrome
Hospital for Sick Children, Toronto
(co-funded with the Macquarie Group Foundation and the Pedersen family)

•    Dr. York Pei 2012 - 2013
Systems biology approach to identify novel therapeutic targets for Alport Syndrome
University Health Network, Toronto
(co-funded with the Macquarie Group Foundation and the Pedersen family)

•    Dr. Judith Savage 2013 – 2014
Derivation and characterisation of induced pluripotent stem cell lines from patients with X-linked Alport Syndrome - a model for examining mechanisms and therapies
The University of Melbourne (Aus)
(co-funded with the Alport Syndrome Foundation (US), the Macquarie Group Foundation and the Pedersen family)