International Alport Syndrome Meeting Report Published

KFOC, Pedersen Family and Partners award two new 2014 Alport Syndrome Research Grants

Dr. Adeera Levin Awarded Kidney Foundation of Canada’s 2014 Medal for Research Excellence

First Nations Adults with Diabetes Have More than Double the Risk of End-Stage Kidney Disease

Dr. Marcello Tonelli Awarded 2013 Medal for Research Excellence for Changing Nephrology Practice in Canada and Beyond

Paying Living Kidney Donors May Be Cost-Effective and Help Prolong Lives

The Kidney Foundation congratulates Dr. Andreas Laupacis on being awarded the inaugural CIHR Barer-Flood Prize in Health Services and Policy Research

New Research to Discover a Cure for Rare Kidney Disease

CSN Announces Editor in Chief of New Journal

Dr. Adeera Levin appointed President of the International Society of Nephrology

Sugary Drinks May Increase Risk of Kidney Stones

Launch of new Canadian National Transplant Research Program

Alberta Researchers Receive Top Achievement in Health Research Award

Kidney Foundation of Canada Helps Fund World’s First Gene Therapy Clinical Trial for Fabry Disease

First-of-Its-Kind Canadian Project to Chart the Future of Dialysis Research

Lead Investigator on Landmark Walkerton Health Study Awarded 2012 Medal for Research Excellence

New Drug Shows Hope for ADPKD Treatment

New Findings Debunk Long-Held Theory that Kidney Disease is Part of the Normal Aging Process

The Kidney Foundation of Canada partners with Kidney Cancer Canada and Government to support national research network

Sat, 01 Dec 2012

First-of-Its-Kind Canadian Project to Chart the Future of Dialysis Research

November 29, 2012 – Do you have an unanswered question about your dialysis management?  If so, a team of Canadian researchers in tandem with patients and caregivers, is conducting the first survey of its kind ever made available to Canadians, and they would like to hear from you. Whether you’re undergoing dialysis treatment, or a person involved in the care of someone on dialysis, you can have your say in helping to chart the future of dialysis research. All submissions are welcome online at www.kidney.ca/dialysissurvey. The survey remains open until Dec. 31st, 2012.

UPDATE: The survey will remain open until January 15, 2013

Dr. Andreas Laupacis, Canada Research Chair in Health Policy and Citizen Engagement, is spearheading a Canadian first in association with the James Lind Alliance (JLA), an independent, non-profit organization from the United Kingdom. JLA has pioneered the approach of bringing together patients, caregivers and clinicians to identify the “top 10 unanswered questions” about treatments that patients would like to see addressed.

“As a person on dialysis, you experience kidney failure treatment firsthand; and it is important that you have a say into the type of research that is done to improve quality of care,” says Dr. Laupacis. “Furthermore, if you have helped someone on dialysis, or are currently supporting someone through the treatment, you may have questions that will resonate with others.” All questions are welcome, be they about the kinds of dialysis treatment, dialysis access, medications, diet, the treatment of symptoms, or lifestyle issues. Questions can be submitted by following the on-screen instructions at www.kidney.ca/dialysissurvey. Participants can submit as many questions as they want. It should only take about 10 minutes; and responses will remain anonymous.

The Chronic Dialysis Patient Survey project is made possible through the support of the Canadian Kidney Knowledge Translation and Generation Network (www.cann-net.ca), the James Lind Alliance (www.lindalliance.org) and The Kidney Foundation of Canada (www.kidney.ca). “This project is an excellent example of how we at The Kidney Foundation work in partnership with innovative leaders to ensure that world-class research is carried out. Projects such as these make it possible for researchers to explore questions of relevance to the people most affected by a specific area of study, in this case dialysis,” says Wim Wolfs, National Director of Research for The Kidney Foundation of Canada and member of the project’s Steering Committee.

The project’s eleven person Steering Committee, which includes an equal number of dialysis patients and researchers, is made up of: Michael Gladish (Yukon), Claire Large (Alberta), Brenda Toth (Saskatchewan) and Howard Silverman (Quebec), who are either on dialysis, close to needing dialysis or who have had a transplant; Annette Cyr, a caregiver of someone on dialysis (Nova Scotia); Brenda Hemmelgarn and Braden Manns, who are nephrologists and researchers from the University of Calgary (Alberta); Sally Crowe, from the James Lind Alliance, Oxford, U.K.; Wim Wolfs, National Director of Research at The Kidney Foundation of Canada; Andreas Laupacis, a physician and researcher from St. Michael’s Hospital in Toronto; Erin Lillie, a research associate from St. Michael’s Hospital in Toronto.

Download the full press release (pdf)