International Alport Syndrome Meeting Report Published

KFOC, Pedersen Family and Partners award two new 2014 Alport Syndrome Research Grants

Dr. Adeera Levin Awarded Kidney Foundation of Canada’s 2014 Medal for Research Excellence

First Nations Adults with Diabetes Have More than Double the Risk of End-Stage Kidney Disease

Dr. Marcello Tonelli Awarded 2013 Medal for Research Excellence for Changing Nephrology Practice in Canada and Beyond

Paying Living Kidney Donors May Be Cost-Effective and Help Prolong Lives

The Kidney Foundation congratulates Dr. Andreas Laupacis on being awarded the inaugural CIHR Barer-Flood Prize in Health Services and Policy Research

New Research to Discover a Cure for Rare Kidney Disease

CSN Announces Editor in Chief of New Journal

Dr. Adeera Levin appointed President of the International Society of Nephrology

Sugary Drinks May Increase Risk of Kidney Stones

Launch of new Canadian National Transplant Research Program

Alberta Researchers Receive Top Achievement in Health Research Award

Kidney Foundation of Canada Helps Fund World’s First Gene Therapy Clinical Trial for Fabry Disease

First-of-Its-Kind Canadian Project to Chart the Future of Dialysis Research

Lead Investigator on Landmark Walkerton Health Study Awarded 2012 Medal for Research Excellence

New Drug Shows Hope for ADPKD Treatment

New Findings Debunk Long-Held Theory that Kidney Disease is Part of the Normal Aging Process

The Kidney Foundation of Canada partners with Kidney Cancer Canada and Government to support national research network

Sun, 30 Jun 2013

New Research to Discover a Cure for Rare Kidney Disease

The Kidney Foundation of Canada joined forces with The Macquarie Group Foundation (Australia) and The Alport Syndrome Foundation (U.S.) to undertake The Kidney Foundation’s first international research competition into Alport Syndrome. Dr. Oliver Gross (Germany) and Dr. Judith A. Savige (Australia) have each been awarded research grants of nearly $100,000 to develop effective treatment for this rare genetic disorder that is the second most common inherited kidney disease.  An inherited disorder of the basement membranes of the kidney, eye and ear, Alport Syndrome (AS) accounts for 3% of all people with kidney failure (end-stage renal disease).

Alport Syndrome mostly affects young men who eventually require dialysis or a kidney transplant by their early 20s. “Because Alport Syndrome is such a rare genetic disease, an international research competition is the optimal means to bring together the best talent and knowledge in this area,” says Kurt Pedersen, Senior Vice President, Investment Advisor, Macquarie Private Wealth.

“We believe that by pooling our resources, The Kidney Foundation of Canada can help generate new knowledge that can reduce, maybe even eliminate, the burden of kidney disease. We also hope to raise awareness of this rare genetic condition that can have such devastating consequences,” says Paul Shay, National Executive Director of The Kidney Foundation.

Download the full press release (pdf)